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Patient Reported Outcomes Measurement Information System (PROMIS®) is a system of highly reliable, valid, flexible, precise, and responsive measures of patient–reported health status for physical, mental, and social well–being. To learn more about PROMIS, visit www.nihpromis.org.

PROMIS tools measure what patients are able to do and how they feel by asking questions. PROMIS measures can be used as primary or secondary endpoints in clinical studies of the effectiveness of treatment, and PROMIS tools can be used across a wide variety of chronic diseases and conditions and in the general population. The PROMIS initiative, which began in 2004, is funded by the National Institutes of Health (NIH) in the United States.

PROMIS International involves activities conducted by US PROMIS researchers and PROMIS international partners. Dr. Istvan Mucsi from Semmelweis University and University of Toronto is the lead representative on the Hungarian PROMIS National Center (PNC).

PROMIS in Hungary

The PROMIS-57 (also includes shorter versions: PROMIS-43 and PROMIS-29) profile instrument has been translated by a multidisciplinary team. For instructions to access them, please contact us at contact@promishungary.org. The questionnaire is currently being validated in patients with chronic kidney disease and in patients with spine problems. It has also been used in pregnant women to assess health related quality of life.

Recently the PROMIS-Preference (PROPr) score has been developed as a summary score for the PROMIS instruments. PROPr is a preference-based scoring system for seven PROMIS domains. It serves as a generic, societal, preference-based summary scoring system of health-related quality of life. It overcomes several limitations of the most widely used generic preference-based measures, including the EuroQol-5D (EQ- 5D) and Health Utilities Index . The PROPr now provides the possibility of simultaneously collecting both health profile and preference-based scores and to quantify health-related quality of life for a variety of uses, including calculating aggregated indices of morbidity and mortality such as QALYs in health economic analyses.

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