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Resources

The authoritative source for PROMIS and related measurement systems (PROMIS, Neuro QoL, ASCQ ME, NIH Toolbox) is HealthMeasures, in collaboration with the PROMIS Health Organization.

Cross walks and linking tables

The PROsetta Stone initiative established links between PROMIS scores and selected legacy measures (for example depression, anxiety, physical function, pain, fatigue, and global health). Linking tables are available via PROsetta Stone.

Conditions of use and permissions

Please review requirements for use, permissions, and related documentation via HealthMeasures: PROMIS guidance on scoring, interpretation, and related documentation .

For Hungary specific enquiries, please contact the PROMIS Hungary National Centre.

Scientific meetings and events

Programmes and sessions from PROMIS Health Organization scientific meetings, workshops, and upcoming events are listed at PROMIS Health Organization Events.

Guidance on selecting patient reported outcomes

HealthMeasures guidance on selecting and using measures: Selecting a HealthMeasure and Recommended HealthMeasures .

Publications and presentations

For PROMIS related publications and presentations, start with the HealthMeasures resource centre: HealthMeasures Resource Center.

Additional background reading

Read the User’s Guide to Implementing Patient Reported Outcomes in Clinical Practice developed by ISOQOL: PDF.

Read about Patient Reported Outcomes in Performance Measurement (NLM Bookshelf): NBK424378.

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